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PREPARE Easy-to-Read Advance Directives
PREPARE for your care and easy-to-read advance directives increase real-time goal concordant care
J Palliat Med, 2023
ACP interventions, such as the PREPARE website and easy-to-read ADs focused on quality of life and preparation for medical decision making, rather than end-of-life procedures, may be more likely to result in GCC. Measuring patient-reported, real-time GCC may be more appropriate than retrospective measures.
Improving Medical-Legal Advance Care Planning
J Pain Symptom Manage, 2020
This article describes the historical disconnects between the medical and legal practice of ACP, recommendations and products of an interprofessional panel of medical and legal experts, and recommendations for future medical-legal collaboration
JAMA Intern Med, 2018
The patient-facing PREPARE program and an easy-to-read advance directive, without clinician-level or system-level interventions, increased documentation of advance care planning and patient-reported engagement, with statistically higher gains for PREPARE. These tools may mitigate literacy and literacy language barriers to advance care planning, allow patients to begin planning on their own, and could substantially improve the process for diverse English-speaking and Spanish-speaking populations.
JAMA Intern Med, 2017
Easy-to-use, patient-facing ACP tools, without clinician- and/or system-level interventions, can increase planning documentation 25% to 35%. Combining the PREPARE website with an easy-to-read AD resulted in higher planning documentation than the AD alone, suggesting that PREPARE may increase planning documentation with minimal health care system resources.
Lost in translation: the unintended consequences of advance directive law on clinical care
Ann Intern Med, 2011
Unintended negative consequences of advance directive legal restrictions may prevent all patients, and particularly vulnerable patients, from making and communicating their end-of-life wishes and having them honored. These restrictions have rendered advance directives less clinically useful. Recommendations include improving readability, allowing oral advance directives, and eliminating witness or notary requirements.
An Advance Directive Redesigned to Meet the Literacy Level of Most Adults: A Randomized Trial
Patient Educ Couns, 2007
The redesigned advance directive was rated more acceptable and useful for advance care planning and was preferred over a standard form. It also resulted in higher six-month completion rates.