Research

Online Program

PREPARE for your care and easy-to-read advance directives increase real-time goal concordant care

J Palliat Med, 2023

ACP interventions, such as the PREPARE website and easy-to-read ADs focused on quality of life and preparation for medical decision making, rather than end-of-life procedures, may be more likely to result in GCC. Measuring patient-reported, real-time GCC may be more appropriate than retrospective measures.

PREPARE for Your Care program increases advance care planning engagement among diverse older adults with cancer

American Cancer Society, 2021

PREPARE plus an easy-to-read AD increased ACP documentation and engagement among diverse older adults with cancer more than an AD alone, with no increase in depression or anxiety between study arms or by cancer. PREPARE may help to decrease ACP disparities among patients with cancer.

Empowering patients with the PREPARE advance care planning program results in reciprocal clinician communication

J Palliat Med, 2021

The patient-directed PREPARE program was associated with greater clinician supportive ACP communication with older adults compared with an AD alone; the effect was most pronounced among Spanish speakers and was mediated by active patient participation.

Engaging Diverse Older Adults With Cognitive Impairment and Caregivers in Advance Care Planning: A Pilot Study of the Interactive PREPARE Website

Alzheimer Journal, 2021

The PREPARE website was feasible and may facilitate ACP engagement among diverse older adults with cognitive impairment and their caregivers.

Empowering Older Adults to Discuss Advance Care Planning During Clinical Visits: The PREPARE Randomized Trial

J Am Geriatr Soc, 2020

The PREPARE program and easy-to-read AD empowered patients to actively participate in ACP discussions during clinical visits more than the AD alone. Increased activation was associated with increased ACP documentation. Therefore, PREPARE may mitigate barriers to ACP among English- and Spanish-speaking older adults.

Empowering Older Adults to Discuss Advance Care Planning During Clinical Visits: The PREPARE Randomized Trial

J Am Geriatr Soc, 2020

The PREPARE program and easy‐to‐read AD empowered patients to actively participate in ACP discussions during clinical visits more than the AD alone. Increased activation was associated with increased ACP documentation. Therefore, PREPARE may mitigate barriers to ACP among English‐ and Spanish‐speaking older adults.

Effect of an Interactive Website to Engage Patients in Advance Care Planning in Outpatient Settings

Ann Fam Med, 2020

In this pragmatic, real-world study of 315 patients across 17 primary care and cancer clinics, implementation of the online PREPARE program increased advance care planning engagement.

Improving Medical-Legal Advance Care Planning

J Pain Symptom Manage, 2020

This article describes the historical disconnects between the medical and legal practice of ACP, recommendations and products of an interprofessional panel of medical and legal experts, and recommendations for future medical-legal collaboration

Engaging Diverse English- and Spanish-Speaking Older Adults in Advance Care Planning: The PREPARE Randomized Clinical Trial

JAMA Intern Med, 2018

The patient-facing PREPARE program and an easy-to-read advance directive, without clinician-level or system-level interventions, increased documentation of advance care planning and patient-reported engagement, with statistically higher gains for PREPARE. These tools may mitigate literacy and literacy language barriers to advance care planning, allow patients to begin planning on their own, and could substantially improve the process for diverse English-speaking and Spanish-speaking populations.

Evaluation of an Advance Care Planning Web-based Resource: Applicability for Cancer Treatment Patients

Support Care Cancer, 2018

Results indicated that PREPARE is a reflective, capacity-building ACP resource that was acceptable, applicable, and understandable for use in oncology. These findings offer direction for both research and practice.

Effect of the PREPARE Website vs an Easy-to-Read Advance Directive on Advance Care Planning Documentation and Engagement Among Veterans A Randomized Clinical Trial

JAMA Intern Med, 2017

Easy-to-use, patient-facing ACP tools, without clinician- and/or system-level interventions, can increase planning documentation 25% to 35%. Combining the PREPARE website with an easy-to-read AD resulted in higher planning documentation than the AD alone, suggesting that PREPARE may increase planning documentation with minimal health care system resources.

Preparing Older Adults with Serious Illness to Formulate Their Goals for Medical Care in the Emergency Department

J Palliat Med, 2017

PREPARE has the potential to engage older adults who are not acutely ill in ACP during their ED visits.

A Novel Website to Prepare Diverse Older Adults for Decision Making and Advance Care Planning: A Pilot Study

J Pain Symptom Manage, 2014

A new, patient-centered ACP website that focuses on preparing patients for communication and decision making significantly improves engagement in the process of ACP and behavior change.

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