Click on the topics below to see questions and answers.
Questions About PREPARE
Does it cost money to use PREPARE?
No. PREPARE is free as long as its use follows our terms of use. PREPARE is not a company, but a program within the University of California. It is OK to go through the PREPARE website, watch the videos, download any of the PREPARE materials, or put on PREPARE movie events – as long as these materials and events are provided for free.
Under our copyright and license agreement, it is OK to provide a PREPARE link as a list of resources to individual patients or people. Please use the complete program name, Prepare for Your Care, and this weblink: https://www.prepareforyourcare.org.
For companies, organizations, clinics, hospitals, insurers, employers, researchers or other institutions who want to brand our materials with their own logos, put our PDF materials on their own websites, use PREPARE materials in research, or use part of PREPARE in their own work, they must have a license agreement with the University of California. Please go here for more information: https://prepareforyourcare.org/partner
Do I have to create an account and sign in to use PREPARE?
No. You can use PREPARE as a guest. But, if you want PREPARE to save your answers, you have to sign in. You may want PREPARE to save your answers if:
Do I have to watch or go through all 5 steps of PREPARE?
No. You can pick which step or steps are the right ones for you. Each step below takes about 10 minutes to go through and answer questions about:
If you create a PREPARE account and sign in, PREPARE can save your answers. That way, if you want to go one step at time, PREPARE will save your answers and your place.
What are all the different PREPARE materials?
PREPARE has several different types of materials that can be helpful for different purposes:
The Website: Going through the PREPARE website and the 5 steps is a great way for someone to learn about what is important in their life and their health care. The website walks people step-by-step through important information, video stories, and questions tailored just for them.
Summary of My Wishes: As people go through PREPARE, the website automatically creates a “Summary of My Wishes.” This summary can be printed and saved as a PDF file.
PREPARE Printed Materials and Movie materials:
Is PREPARE in more than one language?
Yes. PREPARE is in Spanish and English. We are attempting to get additional funding to provide PREPARE in Chinese. Many of our printed advance directive forms may also be in several languages depending upon the state.
How can I get the PREPARE newsletter?
Getting the PREPARE newsletter is a great way to stay up to date on PREPARE innovations, research, events, and coming attractions. You can also follow us on Twitter: @prepareforcare and Facebook: www.facebook.com/prepareforcare. You can also sign up for our quarterly newsletter: https://prepareforyourcare.org/newsletter
How can I donate and help support the PREPARE program?
Thank you for thinking of us. PREPARE is not a business, but a small program run out of the University of California, San Francisco. We depend on grants, license agreements, gifts, and donations to keep the website up and running and free to the public. Every little bit helps. If you would like to make a donation, please visit this site: https://prepareforyourcare.org/support
Did someone send me to PREPARE because they think I am dying?
No. This type of planning and preparation is for all adults, at any age or stage of health. Someone could review PREPARE at age 18 or 80. For example, Step 1 of the PREPARE website is about choosing the right medical decision maker. We all should do this. And, no matter what stage of life or health, this will help make sure our family, friends, and medical providers know our wishes so they will not have to guess. This makes sure, that even if we do get very sick, we can have a say in our healthcare.
Questions About Advance Care Planning
Is PREPARE for YOUR Care right for me if I am not ready to complete an advance directive?
Many people are not ready to complete a legal advance directive form and that is OK. PREPARE can help you just get started. The website and videos will walk you through the steps to begin the process of deciding what is most important to you and your health care so you can begin to share that with your loved ones and medical providers. It can also help you decide on the right medical decision maker. Even watching one video can be helpful.
Can I change my mind about my medical wishes?
You can always change your mind about your medical wishes at any time. This is your choice. If you create a PREPARE account the website will save your answers. That way, if you ever want to come back to change your answers over time, it is easy to do. Otherwise, you may need to start the PREPARE questions over from scratch.
What do I do if I change my mind about my medical wishes?
If you change your mind about your wishes, and you have completed a PREPARE advance directive, update this form. Give the new form to your medical decision maker and medical providers. Destroy old forms.
Questions About Decision Makers
Are there other names for a medical decision maker?
Yes. Sometimes this person is called a surrogate or proxy decision maker, a patient advocate, or durable power of attorney for health care. However, all these terms mean the same thing.
What are the responsibilities (job) of a decision maker?
This information can be found on Page 3 and 4 of your state’s easy-to-read advance directive. In most states, if you are not able, a medical decision maker may choose these things for you:
Depending on how you fill out the form, here are more decisions your medical decision maker can make:
Start or stop life support or medical treatments, such as:
End of life decisions your medical decision maker can make:
What makes a good decision maker?
This information can be found in Step 1 of the PREPARE website and on Page 3 of the easy-to-read advance directive.
The website says that a good medical decision maker is a family member or friend who:
Does my medical decision maker have a say in BOTH my health care and my finances?
A medical decision maker, sometimes also called a Durable Power of Attorney for Healthcare ONLY has a say about your medical care. They do not have a say about your finances. There is a separate durable power of attorney for finances form that can be filled out. Ask your social worker or lawyer about these separate forms.
Questions About Advance Directives
Does this advance directive form really count?
Yes. Doctors take this very seriously. The important part is to talk to your family, friends, and medical providers about your wishes. It is also important to bring in the advance directive to your medical providers so they can put a copy into your medical record.
Does this form cover both Durable Power of Attorney Forms and Living Will Forms?
This form meets the legal requirements for both Durable Power of Attorney and Living Will documents for your state. Yes, you can fill out only Part 1 or Part 2. This is your choice.
Can I write down what I would want if I were to get dementia?
This form is to act as a general guide because it is impossible to know about all the medical situations and treatments you may need in the future. Some people have had experiences themselves, with friends, or with family, or have religious beliefs that help them know they would or would not want certain treatment. If you feel strongly about a particular treatment, you can write this information on page 10 of the easy-to-read advance directive. (If you are using the PREPARE Question Guide, you can write this on page 7). The advance directive gives you space to write all the things that may be important to you about your medical care.
Note: If you want to add other wishes or attach other forms, you can place them right after page 10 of the easy-to-read advance directive. These other forms can be a part of our legal easy-to-read advance directives because all of your wishes are important.
Can I write down my specific wishes about medical treatments like blood transfusions or dialysis?
This form is to act as a general guide because it is impossible to know about all the medical situations and treatments you may need in the future. Some people have had experiences themselves, with friends, or with family, or have religious beliefs that help them know whether they would or would not want certain treatment. If you feel strongly about a particular treatment, you can write this information on page 10 of the easy-to-read advance directive. (If you are using the PREPARE Question Guide, you can write this on page 7). The advance directive gives you space to write all the things that may be important to you about your medical care.
Note: If you want to add other wishes or attach other forms, you can place them right after page 10 of the easy-to-read advance directive. These other forms can be a part of our legal easy-to-read advance directives because all of your wishes are important.
How do I make this form legal?
You will have to sign and date the form. Then, every US state has its own laws for final steps to make the forms legal. Some states require witnesses, a notary public, both or neither. Page 11 of the easy-to-read advance directive lists out that state’s specific rules about how to make the form legal.
Does my advance directive work in other states?
Every US state has its own advance directive law. Some states accept other states’ advance directives, but a few of them do not. In these cases, it is up to the doctor to accept an out-of-state form. If you live or visit several states, there is a BIG benefit of filling out the form on the PREPARE website. If you sign up and create an account, PREPARE can save your answers on a very safe and secure site (server).
Who can be a witness for my advance directive? What are they responsible for?
Every US state has its own laws about witnesses. Witnesses are people who may need to sign the form saying that it really was you who filled out and signed the advance directive. Page 11 and 12 of the easy-to-read advance directive will tell you about the rules in your state for witnesses.
What is a notary public and do I need one to sign my advance directive?
A notary has special training to make forms legal. They can sign and put their stamp on the form to say that it really was you who signed filled out and signed the advance directive. Notaries often charge a small fee for a signature and may take fingerprints. See page 11 of the PREPARE advance directive to see if your state requires a notary public to sign your form.
I have heard that some states have right to die laws. Can I write this on my advance directive?
Every US state has its own laws about this and this request is different from an advance directive. Please talk to your doctor in your state about this. If you feel strongly about this issue, you can write your wishes on Page 10 of the easy-to-read advance directive. It is always helpful for your loved ones and medical providers to know the health situations that would be considered not good quality of life to you. But, right to die laws require specific forms and procedures that are very specific for that request. You would have to ask your doctor about further information in your state.
Questions About Physician’s Orders for Life Sustaining Treatment (POLST)
Is POLST called something else in other states?
In other states, POLST may be called other names, such as POST, MOST, MOLST, or be in different colors.
Most states have POLST forms, but some states do not. Ask your medical providers about the POLST form in your state.
Is an advance directive the same thing as a POLST form?
There are big differences between an advance directive and POLST forms.
The National POLST Paradigm website is a good place to learn more about POLST.
This video is also a great way to learn about POLST.
Where can I learn more about POLST forms?
The National POLST Paradigm website is a good place to learn more about POLST.
This video is also a great way to learn about POLST.