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How To Talk to Your Decision Maker About Flexibility
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Here we will show you how to talk to your medical decision maker about flexibility.
You have not yet answered the question about how much flexibility to give your medical decision maker.
You can do this in the prior menu item “Decide How Much Flexibility To Give.”
It is OK if you are not sure how much flexibility to give your decision maker.
The information below can help when you are ready to talk to other people about your choices.
You chose TOTAL flexibility for your medical decision maker.
You chose SOME flexibility for your medical decision maker.
You chose NO flexibility for your medical decision maker.
Do Not Assume
Do not assume your decision maker will know how much flexibility you want to give them. You have to tell them.
Here are some tips that may help:
Choose a quiet place and time to bring it up.
Make sure your decision maker knows what you are asking them to do.
If the person feels uneasy, you may want to give them time to think about it. Then, you can talk to them again later.
See How to Talk to Your Medical Decision Maker About TOTAL Flexibility
Click the video to learn more. Your situation may be different.
Phil: I know that me being sick has been really hard for both of us. And, I’ve been doing a lot of thinking. When my time comes, I don’t want CPR—or a breathing machine.
Ann: Really!? But—if something happened, I would have to ask the doctors to at least try to keep you alive. Is that selfish of me?
Phil: I know if I become too sick to talk for myself, making medical decisions for me would be very hard on you. That’s why, if you have to make decisions for me, I want you to have total flexibility to work with the doctors and use your best judgment.
Ann: Wait...but you said—
Phil: I—I know. What I mean is, I want you to use my wishes as a general guide. I want you to honor them as best you can, but you don’t have to follow them exactly if that is what you and the doctors think is best at that time. Does that make sense?
Ann: You would prefer it if I follow your wishes, but it’s also OK for me to change your decisions, like asking the doctors to try a breathing machine for a while, if that’s what I think I need to do. Is that what you mean?
Phil: Yes. I give you total flexibility.
See How to Talk About Other Types of Flexibility
Click the video to learn more. Your situation may be different.
Cynthia: I've been thinking about the medical decisions you may need to make for me if I can’t make them myself.
James: Mm. Tell me what you’re thinking.
Cynthia: Well, it’s hard to know what the future might bring. That’s why I want you to have some flexibility to use my medical wishes as a general guide. I want you to know that it is OK for you to work with my doctors to make the best decisions that you can at that time.
James: That makes sense.
Cynthia: I mean, some decisions may come up for you that we never talked about. But!
James: But what?
Cynthia: There is one decision that I never want you to change, no matter what!
James: Tell me.
Cynthia: If I get Alzheimer’s disease, like my mom—when my memory is gone, I can’t remember my family anymore, and I can’t feed myself—please don’t let them give me a feeding tube. I don’t want to live like that.
James: I know that time with your mom was tough.
Cynthia: Yes, it was. So if my body is shutting down and I stop eating, please let me die naturally, like Mom did when we finally took out the feeding tube. Does that make sense?
James: Yes. You are giving me some flexibility to make medical decisions for you.
Cynthia: That’s right. Thank you.
Linda: My doctor asked me about how much flexibility I wanted to give you if you ever needed to make medical decisions for me. You know, about my lung problems.
Rita: OK, Mom. So...what do you mean by flexibility, exactly?
Linda: Well, I’ve been living with this breathing problem for a long time and it has really worn me down. I was on that breathing machine before, and it just made me weaker.
Rita: I know.
Linda: So I’m done—I don’t ever want to be on one of those machines again.
Rita: This is really hard to hear, but, I can understand—
Linda: And—I don’t ever want to go back to the hospital, either! A breathing mask and oxygen at home are OK to keep me comfortable. But, when it’s my time, it’s my time. I want a natural death with hospice care. At home. That’s what I want. That’s my decision.
Rita: But...but what if you can’t speak for yourself? Are you saying that I could never change these decisions?
Linda: Rita, I want you to honor my wishes and never change these decisions. So do you understand what I want?
Rita: Yes, mom. You don’t want to go back to the hospital and you don’t want to be put on a breathing machine.
Linda: That’s what I mean by no flexibility. Thank you, sweetheart.
See How to Talk to Your Medical Decision Maker About SOME Flexibility
Click the video to learn more. Your situation may be different.
Cynthia: I've been thinking about the medical decisions you may need to make for me if I can’t make them myself.
James: Mm. Tell me what you’re thinking.
Cynthia: Well, it’s hard to know what the future might bring. That’s why I want you to have some flexibility to use my medical wishes as a general guide. I want you to know that it is OK for you to work with my doctors to make the best decisions that you can at that time.
James: That makes sense.
Cynthia: I mean, some decisions may come up for you that we never talked about. But!
James: But what?
Cynthia: There is one decision that I never want you to change, no matter what!
James: Tell me.
Cynthia: If I get Alzheimer’s disease, like my mom—when my memory is gone, I can’t remember my family anymore, and I can’t feed myself—please don’t let them give me a feeding tube. I don’t want to live like that.
James: I know that time with your mom was tough.
Cynthia: Yes, it was. So if my body is shutting down and I stop eating, please let me die naturally, like Mom did when we finally took out the feeding tube. Does that make sense?
James: Yes. You are giving me some flexibility to make medical decisions for you.
Cynthia: That’s right. Thank you.
See How to Talk About Other Types of Flexibility
Click the video to learn more. Your situation may be different.
Phil: I know that me being sick has been really hard for both of us. And, I’ve been doing a lot of thinking. When my time comes, I don’t want CPR—or a breathing machine.
Ann: Really!? But—if something happened, I would have to ask the doctors to at least try to keep you alive. Is that selfish of me?
Phil: I know if I become too sick to talk for myself, making medical decisions for me would be very hard on you. That’s why, if you have to make decisions for me, I want you to have total flexibility to work with the doctors and use your best judgment.
Ann: Wait...but you said—
Phil: I—I know. What I mean is, I want you to use my wishes as a general guide. I want you to honor them as best you can, but you don’t have to follow them exactly if that is what you and the doctors think is best at that time. Does that make sense?
Ann: You would prefer it if I follow your wishes, but it’s also OK for me to change your decisions, like asking the doctors to try a breathing machine for a while, if that’s what I think I need to do. Is that what you mean?
Phil: Yes. I give you total flexibility.
Linda: My doctor asked me about how much flexibility I wanted to give you if you ever needed to make medical decisions for me. You know, about my lung problems.
Rita: OK, Mom. So...what do you mean by flexibility, exactly?
Linda: Well, I’ve been living with this breathing problem for a long time and it has really worn me down. I was on that breathing machine before, and it just made me weaker.
Rita: I know.
Linda: So I’m done—I don’t ever want to be on one of those machines again.
Rita: This is really hard to hear, but, I can understand—
Linda: And—I don’t ever want to go back to the hospital, either! A breathing mask and oxygen at home are OK to keep me comfortable. But, when it’s my time, it’s my time. I want a natural death with hospice care. At home. That’s what I want. That’s my decision.
Rita: But...but what if you can’t speak for yourself? Are you saying that I could never change these decisions?
Linda: Rita, I want you to honor my wishes and never change these decisions. So do you understand what I want?
Rita: Yes, mom. You don’t want to go back to the hospital and you don’t want to be put on a breathing machine.
Linda: That’s what I mean by no flexibility. Thank you, sweetheart.
See How to Talk to Your Medical Decision Maker About NO Flexibility in Decision Making
Click the video to learn more. Your situation may be different.
Linda: My doctor asked me about how much flexibility I wanted to give you if you ever needed to make medical decisions for me. You know, about my lung problems.
Rita: OK, Mom. So...what do you mean by flexibility, exactly?
Linda: Well, I’ve been living with this breathing problem for a long time and it has really worn me down. I was on that breathing machine before, and it just made me weaker.
Rita: I know.
Linda: So I’m done—I don’t ever want to be on one of those machines again.
Rita: This is really hard to hear, but, I can understand—
Linda: And—I don’t ever want to go back to the hospital, either! A breathing mask and oxygen at home are OK to keep me comfortable. But, when it’s my time, it’s my time. I want a natural death with hospice care. At home. That’s what I want. That’s my decision.
Rita: But...but what if you can’t speak for yourself? Are you saying that I could never change these decisions?
Linda: Rita, I want you to honor my wishes and never change these decisions. So do you understand what I want?
Rita: Yes, mom. You don’t want to go back to the hospital and you don’t want to be put on a breathing machine.
Linda: That’s what I mean by no flexibility. Thank you, sweetheart.
See How to Talk About Other Types of Flexibility
Click the video to learn more. Your situation may be different.
Phil: I know that me being sick has been really hard for both of us. And, I’ve been doing a lot of thinking. When my time comes, I don’t want CPR—or a breathing machine.
Ann: Really!? But—if something happened, I would have to ask the doctors to at least try to keep you alive. Is that selfish of me?
Phil: I know if I become too sick to talk for myself, making medical decisions for me would be very hard on you. That’s why, if you have to make decisions for me, I want you to have total flexibility to work with the doctors and use your best judgment.
Ann: Wait...but you said—
Phil: I—I know. What I mean is, I want you to use my wishes as a general guide. I want you to honor them as best you can, but you don’t have to follow them exactly if that is what you and the doctors think is best at that time. Does that make sense?
Ann: You would prefer it if I follow your wishes, but it’s also OK for me to change your decisions, like asking the doctors to try a breathing machine for a while, if that’s what I think I need to do. Is that what you mean?
Phil: Yes. I give you total flexibility.
Cynthia: I've been thinking about the medical decisions you may need to make for me if I can’t make them myself.
James: Mm. Tell me what you’re thinking.
Cynthia: Well, it’s hard to know what the future might bring. That’s why I want you to have some flexibility to use my medical wishes as a general guide. I want you to know that it is OK for you to work with my doctors to make the best decisions that you can at that time.
James: That makes sense.
Cynthia: I mean, some decisions may come up for you that we never talked about. But!
James: But what?
Cynthia: There is one decision that I never want you to change, no matter what!
James: Tell me.
Cynthia: If I get Alzheimer’s disease, like my mom—when my memory is gone, I can’t remember my family anymore, and I can’t feed myself—please don’t let them give me a feeding tube. I don’t want to live like that.
James: I know that time with your mom was tough.
Cynthia: Yes, it was. So if my body is shutting down and I stop eating, please let me die naturally, like Mom did when we finally took out the feeding tube. Does that make sense?
James: Yes. You are giving me some flexibility to make medical decisions for you.
Cynthia: That’s right. Thank you.
See How to Talk to Your Medical Decision Maker About Flexibility in Decision Making
Click the videos to learn more. Your situation may be different.
Phil: I know that me being sick has been really hard for both of us. And, I’ve been doing a lot of thinking. When my time comes, I don’t want CPR—or a breathing machine.
Ann: Really!? But—if something happened, I would have to ask the doctors to at least try to keep you alive. Is that selfish of me?
Phil: I know if I become too sick to talk for myself, making medical decisions for me would be very hard on you. That’s why, if you have to make decisions for me, I want you to have total flexibility to work with the doctors and use your best judgment.
Ann: Wait...but you said—
Phil: I—I know. What I mean is, I want you to use my wishes as a general guide. I want you to honor them as best you can, but you don’t have to follow them exactly if that is what you and the doctors think is best at that time. Does that make sense?
Ann: You would prefer it if I follow your wishes, but it’s also OK for me to change your decisions, like asking the doctors to try a breathing machine for a while, if that’s what I think I need to do. Is that what you mean?
Phil: Yes. I give you total flexibility.
Cynthia: I've been thinking about the medical decisions you may need to make for me if I can’t make them myself.
James: Mm. Tell me what you’re thinking.
Cynthia: Well, it’s hard to know what the future might bring. That’s why I want you to have some flexibility to use my medical wishes as a general guide. I want you to know that it is OK for you to work with my doctors to make the best decisions that you can at that time.
James: That makes sense.
Cynthia: I mean, some decisions may come up for you that we never talked about. But!
James: But what?
Cynthia: There is one decision that I never want you to change, no matter what!
James: Tell me.
Cynthia: If I get Alzheimer’s disease, like my mom—when my memory is gone, I can’t remember my family anymore, and I can’t feed myself—please don’t let them give me a feeding tube. I don’t want to live like that.
James: I know that time with your mom was tough.
Cynthia: Yes, it was. So if my body is shutting down and I stop eating, please let me die naturally, like Mom did when we finally took out the feeding tube. Does that make sense?
James: Yes. You are giving me some flexibility to make medical decisions for you.
Cynthia: That’s right. Thank you.
Linda: My doctor asked me about how much flexibility I wanted to give you if you ever needed to make medical decisions for me. You know, about my lung problems.
Rita: OK, Mom. So...what do you mean by flexibility, exactly?
Linda: Well, I’ve been living with this breathing problem for a long time and it has really worn me down. I was on that breathing machine before, and it just made me weaker.
Rita: I know.
Linda: So I’m done—I don’t ever want to be on one of those machines again.
Rita: This is really hard to hear, but, I can understand—
Linda: And—I don’t ever want to go back to the hospital, either! A breathing mask and oxygen at home are OK to keep me comfortable. But, when it’s my time, it’s my time. I want a natural death with hospice care. At home. That’s what I want. That’s my decision.
Rita: But...but what if you can’t speak for yourself? Are you saying that I could never change these decisions?
Linda: Rita, I want you to honor my wishes and never change these decisions. So do you understand what I want?
Rita: Yes, mom. You don’t want to go back to the hospital and you don’t want to be put on a breathing machine.
Linda: That’s what I mean by no flexibility. Thank you, sweetheart.
See How to Talk to Your Medical Decision Maker About Flexibility in Decision Making
Click the videos to learn more. Your situation may be different.
Phil: I know that me being sick has been really hard for both of us. And, I’ve been doing a lot of thinking. When my time comes, I don’t want CPR—or a breathing machine.
Ann: Really!? But—if something happened, I would have to ask the doctors to at least try to keep you alive. Is that selfish of me?
Phil: I know if I become too sick to talk for myself, making medical decisions for me would be very hard on you. That’s why, if you have to make decisions for me, I want you to have total flexibility to work with the doctors and use your best judgment.
Ann: Wait...but you said—
Phil: I—I know. What I mean is, I want you to use my wishes as a general guide. I want you to honor them as best you can, but you don’t have to follow them exactly if that is what you and the doctors think is best at that time. Does that make sense?
Ann: You would prefer it if I follow your wishes, but it’s also OK for me to change your decisions, like asking the doctors to try a breathing machine for a while, if that’s what I think I need to do. Is that what you mean?
Phil: Yes. I give you total flexibility.
Cynthia: I've been thinking about the medical decisions you may need to make for me if I can’t make them myself.
James: Mm. Tell me what you’re thinking.
Cynthia: Well, it’s hard to know what the future might bring. That’s why I want you to have some flexibility to use my medical wishes as a general guide. I want you to know that it is OK for you to work with my doctors to make the best decisions that you can at that time.
James: That makes sense.
Cynthia: I mean, some decisions may come up for you that we never talked about. But!
James: But what?
Cynthia: There is one decision that I never want you to change, no matter what!
James: Tell me.
Cynthia: If I get Alzheimer’s disease, like my mom—when my memory is gone, I can’t remember my family anymore, and I can’t feed myself—please don’t let them give me a feeding tube. I don’t want to live like that.
James: I know that time with your mom was tough.
Cynthia: Yes, it was. So if my body is shutting down and I stop eating, please let me die naturally, like Mom did when we finally took out the feeding tube. Does that make sense?
James: Yes. You are giving me some flexibility to make medical decisions for you.
Cynthia: That’s right. Thank you.
Linda: My doctor asked me about how much flexibility I wanted to give you if you ever needed to make medical decisions for me. You know, about my lung problems.
Rita: OK, Mom. So...what do you mean by flexibility, exactly?
Linda: Well, I’ve been living with this breathing problem for a long time and it has really worn me down. I was on that breathing machine before, and it just made me weaker.
Rita: I know.
Linda: So I’m done—I don’t ever want to be on one of those machines again.
Rita: This is really hard to hear, but, I can understand—
Linda: And—I don’t ever want to go back to the hospital, either! A breathing mask and oxygen at home are OK to keep me comfortable. But, when it’s my time, it’s my time. I want a natural death with hospice care. At home. That’s what I want. That’s my decision.
Rita: But...but what if you can’t speak for yourself? Are you saying that I could never change these decisions?
Linda: Rita, I want you to honor my wishes and never change these decisions. So do you understand what I want?
Rita: Yes, mom. You don’t want to go back to the hospital and you don’t want to be put on a breathing machine.
Linda: That’s what I mean by no flexibility. Thank you, sweetheart.
Words You Can Say
You chose TOTAL flexibility for your medical decision maker.
Here are some words you can use to give your medical decision maker TOTAL flexibility.
How to say it:
"If I become too sick to make my own decisions, I give you permission to have total flexibility in making decisions for me. It is OK to use my medical wishes as a general guide. It is also OK to work with my doctors to make the best decisions that you can. It is OK to change my prior decisions if you and the doctors think it is best at that time."
This is one example. Your situation may be different.
Words You Can Say For Other Types of Flexibility
SOME Flexibility
"If I become too sick to make my own decisions, I give you permission to have some flexibility in making decisions for me. It is OK to use my medical wishes as a general guide and to work with my doctors to make the best decisions that you can. It is OK to change my prior decisions if you and the doctors think it is best at that time. But, there are some decisions that I never want you to change no matter what. These decisions are…"
NO Flexibility
"If I become too sick to make my own decisions, I want you to follow my medical wishes exactly. Please follow the wishes I tell you or write down no matter what. I never want you to change my medical decisions, even if the doctors are telling you that these decisions are not in my best interest."
Words You Can Say
You chose SOME flexibility for your medical decision maker.
Here are some words you can use to give your medical decision maker SOME flexibility.
How to say it:
"If I become too sick to make my own decisions, I give you permission to have some flexibility in making decisions for me. It is OK to use my medical wishes as a general guide and to work with my doctors to make the best decisions that you can. It is OK to change my prior decisions if you and the doctors think it is best at that time. But, there are some decisions that I never want you to change no matter what. These decisions are…"
This is one example. Your situation may be different.
Words You Can Say For Other Types of Flexibility
TOTAL Flexibility
"If I become too sick to make my own decisions, I give you permission to have total flexibility in making decisions for me. It is OK to use my medical wishes as a general guide. It is also OK to work with my doctors to make the best decisions that you can. It is OK to change my prior decisions if you and the doctors think it is best at that time."
NO Flexibility
"If I become too sick to make my own decisions, I want you to follow my medical wishes exactly. Please follow the wishes I tell you or write down no matter what. I never want you to change my medical decisions, even if the doctors are telling you that these decisions are not in my best interest."
Words You Can Say
You chose NO flexibility for your medical decision maker.
Here are some words you can use to tell your medical decision maker about NO flexibility in decision making.
How to say it:
"If I become too sick to make my own decisions, I want you to follow my medical wishes exactly. Please follow the wishes I tell you or write down no matter what. I never want you to change my medical decisions, even if the doctors are telling you that these decisions are not in my best interest."
This is one example. Your situation may be different.
Words You Can Say For Other Types of Flexibility
TOTAL Flexibility
"If I become too sick to make my own decisions, I give you permission to have total flexibility in making decisions for me. It is OK to use my medical wishes as a general guide. It is also OK to work with my doctors to make the best decisions that you can. It is OK to change my prior decisions if you and the doctors think it is best at that time."
SOME Flexibility
"If I become too sick to make my own decisions, I give you permission to have some flexibility in making decisions for me. It is OK to use my medical wishes as a general guide and to work with my doctors to make the best decisions that you can. It is OK to change my prior decisions if you and the doctors think it is best at that time. But, there are some decisions that I never want you to change no matter what. These decisions are…"
When Ready, Words You Can Say
It is OK if you are not sure how much flexibility to give. Here are some examples of how you can talk with your medical decision maker about flexibility when you are ready.
TOTAL Flexibility
"If I become too sick to make my own decisions, I give you permission to have total flexibility in making decisions for me. It is OK to use my medical wishes as a general guide. It is also OK to work with my doctors to make the best decisions that you can. It is OK to change my prior decisions if you and the doctors think it is best at that time."
SOME Flexibility
"If I become too sick to make my own decisions, I give you permission to have some flexibility in making decisions for me. It is OK to use my medical wishes as a general guide and to work with my doctors to make the best decisions that you can. It is OK to change my prior decisions if you and the doctors think it is best at that time. But, there are some decisions that I never want you to change no matter what. These decisions are…"
NO Flexibility
"If I become too sick to make my own decisions, I want you to follow my medical wishes exactly. Please follow the wishes I tell you or write down no matter what. I never want you to change my medical decisions, even if the doctors are telling you that these decisions are not in my best interest."
These are examples. Your situation may be different.
When Ready, Words You Can Say
It is OK if you are not sure how much flexibility to give. Here are some examples of how you can talk with your medical decision maker about flexibility when you are ready.
TOTAL Flexibility
"If I become too sick to make my own decisions, I give you permission to have total flexibility in making decisions for me. It is OK to use my medical wishes as a general guide. It is also OK to work with my doctors to make the best decisions that you can. It is OK to change my prior decisions if you and the doctors think it is best at that time."
SOME Flexibility
"If I become too sick to make my own decisions, I give you permission to have some flexibility in making decisions for me. It is OK to use my medical wishes as a general guide and to work with my doctors to make the best decisions that you can. It is OK to change my prior decisions if you and the doctors think it is best at that time. But, there are some decisions that I never want you to change no matter what. These decisions are…"
NO Flexibility
"If I become too sick to make my own decisions, I want you to follow my medical wishes exactly. Please follow the wishes I tell you or write down no matter what. I never want you to change my medical decisions, even if the doctors are telling you that these decisions are not in my best interest."
These are examples. Your situation may be different.